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Transplants
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Support
Groups (Listed by State)
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Alabama
P.O. Box 263
Slocomb, AL 36375
Annette McCollough, 205-886-2825
Open to All
Southwest Transplant Support
Group
University of Alabama
820 University Blvd., #4-F
Mobile AL 36609
Beth Hagler, 205-460-0800
Open to All
TRIO Alabama
1900 Waverly Parkway
Opelika AL 36801
Carol Letlow, 334-749-2862
Open to All
Alaska
Alaska Kidney Center 7231 Kifka Circle
Anchorage AK 99504
907-653-3149 x13
Liver Transplant Education/Support
Group
University Medical Center
1501 North Campbell Ave.
Tucson AZ 85724
Tiana Barrentine, 602-694-4331
Liver
Valley Support Group
Center for Transplant Services
Samaritan Transplant Services
1410 N. 3rd Street
Phoenix AZ 85004
Susan Foster CISW/
Charlie Thomas CISW, 602-251-2700/800-554-1923
Liver Disease Pre- and Post Liver Transplant Patients
Arkansas
Central Arkansas Chapter Transplant
Support Group
1100 North University Ave. #200
Little Rock AR 72207-6344
Dennis McCrackin, 501-224-2623
Open to All
Arkansas
P.O. Box 250607
Little Rock AR 72225
Kaye Gilbert, 501-945-2485/501-954-TRIO (8746)
Open to All
California
Coachella Valley Hepatitis C,
Liver Disease and Transplant Support Group
Mission Statement:
To
provide support, promote education, generate awareness, and advocate for
quality medical care for all people with liver disease in the Coachella
Valley area of Southern California
Held Every Monday
11:00 A.M.
(except
holidays)
At
the
Portola Community Center
45480 Portola Ave
Palm Desert, CA 92260
* * * * * * * * * * * * * * * * * * * * * * * * * * * *
Held Second Monday Each Month
7:00 P.M.
Martin
Anthony Sinatra Education Center
Mezzanine room
Desert Regional Medical Center
1150 North Indian Canyon
Palm Springs, CA
Come and join us in learning and giving
emotional support to one another.
For additional information
please call Dr. Richard Darling, DDS, at 760-200-2766
P.O.
Box 11991, Palm Desert, CA 92255-1991
Sponsored by the Loma Linda University Medical Center
Transplantation Institute
Click Here to Print
Liver Disease & Transplant Support Group
Green Hospital of Scripps Clinic
10666 North Torrey Pines Rd.
La Jolla CA 92037
Richard Hellman, LCSW/
Lou Ann Biermann, RN/
Kathleen Lipardis, RN, 619-554-9210
Liver (Pre- and Post-Transplant)
Cin-Tom Liver Support Group of the North
Valley
1825 Delmar Ave.
Redding CA 96003
Cindy Steffen/
Tom Johnson, 916-241-0715/916-244-4749
Liver Liver Diseases
Friday Family Group
California Pacific Medical Center Pacific Campus
2333 Buchanan St.
San Francisco CA 94120
Joyce Toohey LCSW/
Marjorie Davis LCSW, 415-923-3514
Heart Liver
The Gift of Life Family Support
Group
4064 East North Ave.
Fresno CA 93725
Mike & Diane Watson, 209-497-8328/
Care-Finder: 209-233-CARE (2273)
Open to All
Inland Empire Transplant Support Group
2738 South Cucamonga Ave.
Ontario CA 91761-6910
Donald Goss, 909-923-7114
Pre- and Post-Transplants Patients
Liver Disease Support Group
St. Bernardine Medical Center
2101 North Waterman Ave.
San Bernardino CA 92404
Pat Folk RN BSN CCTC/
Martha Jorgenson, 310-855-2641/909-881-7101
Liver Disease
Liver Transplant Support Group
California Pacific Medical Center
2333 Buchanan
San Francisco CA 94115
Marjorie Davis, LCSW 415-923-3323
Liver
Liver Transplant Support Group
Cedars-Sinai Medical Center
8635 W. 3rd Street Suite 590W
Los Angeles CA 90048
Stacey Blum LCSW, 310-855-2641
Pre- and Post-Liver Transplant
Liver Transplant Support Group
Stanford University Medical Center
300 Pasteur H0315
Stanford CA 94305
Rae Ann Berry LCSW, 415-723-5581
Liver
Liver Transplant Support Group
UCLA Medical Center
10833 LeConte Ave.
Los Angeles CA 90024-1729
Ron Furuyama LCSW, 310-825-5921
Liver Transplant Support Group
North-Bay:
Kaiser Permanente - Internal Medicine 2-B or A West Office Building
Santa Rosa, first Wednesday of each month, from 7-8:30 pm.
Betty at 707/838-4857 or Carol at 707/253-8631
Post liver transplant and waiting list patients and their support
person.
Colorado
Liver Transplant Support
Group
University Hospital Campus
Box C300
4200 East 9th Ave.
Denver CO 80262
Michael Talamantes, MSSW,303-270-7506
Liver
Connecticut
172 Boston St.
Middleton MA 01949
Marty Smith Director, 508-777-6050/fax: 508-777-0620
Open to All
Florida
Tampa Bay Hepatitis and Disease Support Group Liver
Columbia Edward White Hospital
220 90th Ave. NE Auditorium Ste. 1G
St. Petersburg FL 33702
Susan Pawlak, 813-896-2400 ext. 225
Liver
Tampa Bay Liver Transplant Support Group
Columbia Edward White Hospital
220 90th Ave. NE Auditorium Ste. 1G
St. Petersburg FL 33702
Don & Dale Vauiso, 813-577-0836
Liver
TRIO North East Florida
4215 South Point Blvd. Suite 140
Jacksonville FL 33216
J.T. Rhodes, 904-296-9055
Open to All
TRIO South Florida
12295 SW 151st Street Apt. 203
Miami FL 33186 Joan Boarder 305-235-6179
Open to All
TRIO West Central Florida
518 Quincy Rd. North
Venice FL, 34292
Ken & Roxanne Hardt, 813-497-0083
Open to All
HCV Support Group
119 Johnnycake Drive
Naples FL, 33942
Rick Koch, 941-591-2287
Hepatitis C and Pre- and Post-Liver Transplant Patients
National Organization for Transplant Enlightenment
P.O. Box 261466
Tampa FL 33685-1466
Emily Ortiz, 813-887-1097
Open to All
National Organ Transplantation Foundation
2197 Gretna Dr.
Deltona FL 32738
Abe Colon, 407-574-4938
Georgia
Liver Transplant Support
Group
Emory University
Hospital
1364 Clifton Rd.
Atlanta GA 30322
Iris Bordeaux
LCSW, 404-712-4185
Illinois Transplant Support Services
University of Chicago Hospitals
5841 South Maryland Ave. MC1098
Chicago IL 60637
Peggy Baker, LCSW, 312-702-6730
Pre- and Post-Transplant Family Support Groups
Kidney and Liver Transplant Educational Sessions
University of Chicago Hospitals
5841 South Maryland Ave. MC 1098
Chicago IL 60637
Peggy Baker, LCSW, 312-702-6730
Kidney Liver
New Beginnings Quad City Area Transplant Support Group
1205 35th St.
Moline IL 61265
Laury Heckenkamp, 309-797-9450
Open to All
Organ Transplant Support Inc. (OTS)
P.O. Box 471
Naperville IL 60566-0471
Don LaRocco, 708-527-8640/fax: 708-527-8682
Open to All(Pre- and Post-Transplant)
Indiana Transplant Support Group
Methodist Hospital of Indiana
I-65 at 21st St.
Indianapolis IN 46206-1367
Stephny Huguenard, BSW, 317-929-8677
Heart Lung Liver(Pre- and Post-Transplant)
TRI State Liver Transplant Support Group
Patty Britton
2046 Bridgette Lane Hebron, KY 41048
689-7931
pbritton@fuse.net
for liver transplant candidates, recipients, and their families (no
dues, fees, or subscription rates)
Iowa
Anxiously Awaiting a Second Chance at Life
University of Iowa Hospital & Clinic
1620 JCP - UIHC
Iowa City IA 52242
Sara Vance, 319-356-4807
Open To All
Life from Life Mid-Iowa Transplant Support Group, Des Moines
5924 Aspen Circle
Johnston IA 50131
Stuart Johnsrud, 515-270-1227
Open to All
Recipient Donor Network
Mary Grelley Medical Center
117-11th St.
Ames IA 50010
515-292-0952
Open to All
Transplant Support Group
Marian Health Center
4620 Filmore
Sioux City IA 51108
Diana Reeser, 712-239-4075/712-255-2324
Open to All
Transplant Support Group
Univeristy of Iowa Hospitals & Clinics
6 Roy Carver East
Iowa City IA 52242
Karin McKeone, MSW/ Kelly Corcran, MSW, 319-356-2207
Liver Kidney Pancreas
Kansas
University Liver Support Group
University of Kansas Medical Center
3901 Rainbow Ave.
Kansas City KS 66160-7309
Carol Garman, RN/Judith Kerr, Chair, 913-588-7613/913-339-6928
Liver
Organ/Tissue Transplant Support Group
3518 Bellaire
Wichita KS 67218
Glenda Jespersen, 316-684-5074/316-685-5699
Open to All
Kentucky
Transplant Support Group
Audubon Regional Medical Center
One Audubon Plaza Dr.
Louisville KY 40217
Carolyn Nicholson, RN, 502-636-7135
Open to All
Transplant Support Group
Jewish Hospital
217 East Chestnut St.
Louisville KY 40202
Beth Creamer, ACSW, 502-587-4358
Kidney Liver Pancreas
Kentucky/Louisville
4223 New Hopewell Rd.
Louisville KY 40299
Pat Sammons, 502-267-5495
Open to All
TRIO Second Chance
718 Seminole Drive
Madison KY 42431
Charlotte Stuart, 502-821-1847
Open to All
TRI State Liver Transplant Support Group
Patty Britton
2046 Bridgette Lane Hebron, KY 41048
689-7931
pbritton@fuse.net
for liver transplant candidates, recipients, and their families (no
dues, fees, or subscription rates)
Louisiana
Liver Transplant Support Group
Willis Knighton Medical Center
2600 Greenwood Rd.
Shreveport LA 71103
Social Services, 318-632-4459
Liver
Northeast Louisiana Transplant Support Group
c/o Barbara Weems
P.O. Box 1
Delhi LA 71232-0001
Barbara Weems/Pat Inman, 318-878-2754/318-396-6147
Open to All
Maine
172 Boston St.
Middleton MA 01949
Marty Smith Director, 508-777-6050/fax: 508-777-0620
Open to All
Maryland
Adult Liver Transplant Support Group
John's Hopkins Hospital
Dept. of Social Work
600 North Wolfe St.
Baltimore MD 21287
Bruce McClary, LCSW, 410-955-5686
Liver (Pre- and Post-Transplant)
Nation's Capital Area TRIO (a chapter of
TRIO)
P.O. Box 7633
Arlington VA 22207
Jane Leon, 703-920-8746
Open to All
On T.R.A.C. - Transplant Recipients Are Coping
University of Maryland Medical System
Section of Transplantation
22 South Greene St. Ste. 200
Baltimore MD 21201
Nancy Thompson, MSW, 410-328-5408
Open to All
Pediatric Transplant Parents Association
John's Hopkins Children's Center
Carnegie 100
600 North Wolfe St.
Baltimore MD 21287-5177
Christine Peck, LCSW-C, 410-614-2714
Liver Kidney(Pre- and Post-Transplant)
Pediatric Transplant Parents Association
John's Hopkins Hospital
P.O. Box 418
Churchton MD 20733
Carol Bryon, 410-614-2714
Open to All(Mostly Liver and Kidney)
Renal Discussion Group
National Kidney Foundation of Maryland
678 Stafford Hill
Glen Burnie MD 21061
Alexis Southworth, MSW, LGSW, 410-787-0343
Open to All
TRIO Eastern Shore (a chapter of
TRIO)
P.O. Box 43
Easton MD 21601
Jim Hundertmark, 410-820-1361
Open to All
TRIO Greater Baltimore (a chapter of
TRIO)
3 E. Madison Street
Baltimore MD 21202
Pat Lebowitz, 410-547-8947
Open to All
Massachusetts
Family Support Group/ Pediatric Liver Disease
61 Maple Pond Ln.
Duxbury MA 02332
Judy Koontz, 617-585-8415
Liver
172 Boston St.
Middleton MA 01949
Marty Smith Director, 508-777-6050/fax: 508-777-0620
Open to All
TRIO Merrimack Valley (a chapter of
TRIO)
377 Columbia Road
North Andover MA 07845
Everett or Clara Whipple, 508-682-5627
Open to All
Oxalosis & Hyperoxaluria Foundation
37R Thompson St. Medical Center
Maynard MA 01754
Cindy Ruzich/Tammy Murphy, 508-461-0614/800-484-5031 x5100
e-mail: OHF@OHF.ULTRANET.COM
Kidney Liver
Michigan
Acts II: Grand Rapids Transplant Support Group
Meets every 3rd Tuesday
7 - 9pm
alternates between Blodgett and Butterworth Hospitals
(call for location)
Liz Frederickson, RN, 616-774-7671
Flint Chapter of National Kidney Foundation
Hurley Medical Center
3535 Kellar Ave.
Flint MI 48504
Richard Holicki, 313-785-9168
Open to All (Pre- and Post-Transplant)
Flint Transplant Support Group
Meets 2nd Saturdays 2-4pm
St. Joseph Hospitol
Administration Bldg., 4th floor
conference room
Jim and Shirley Teffner or
Jerry and Colleen McDaniels, 313-733-1758
Heart Support Group
Henry Ford Hospital, Detroit, MI.
Liver Transplant Support Group
Meets the 2nd and 4th Thursday of each month 11am Call 313-876-2911
for more information
Lakeshore Transplant Support Group, Muskegon, MI.
Meets the 2nd Wednesday of each month 7pm
Hackley Hospital
Muskegon, MI.
All transplant patients, their families and donor families
For more information call:
C.J. or Pat Raugh at 616-744-2397
LOTS (Lansing Organ Transplant Support Group)
10544 Telephone Network For more information please call or write:
John Brinkerhuff, 517-646-6331
10544 Twain St.
Dimondale, MI 48821
( Open to all Pre- and Post Transplant Recipients )
L.O.T.T.S. TRIO (a chapter of
TRIO)
P.O. Box 1424
Portage MI 49081-1424
Jan Getz, 616-349-6630
Open to All
LOTTS (Living Organ and Tissue Transplant Support Group)
LOTTS ( Living Organ and Tissue Support Group ) Kalamazoo, MI.
Meets the 2nd Tuesday of each month 7 - 8:30 pm
For more information please call:
Jan Getz 616-349-66330 or Bill or Pat Johnson 616-679-5757
Open to all transplant patients pre/ post and their families
Michigan Transplant Group
350 North Hagadorn
South Lyons MI 48178
810-486-3180/810-486-3059
Open to All
New Life, Monroe
Meets the first Tuesday of each month 7:30pm
Mercy Memorial Hospital
Monroe, MI
For more information please call:
Andy Alston 313 586-2410 or
Nancy Bunch 313-281-3523
Email: andy@tdi.net
Organ Transplant and Dialysis Support Group
Marquette General Hospital
425 Peterson Ave.
Ishpeming MI 49849
Roger Benckendorf,
906-226-5774 (Day)/ 906-486-4555 (Evening)
Open to All
Organ Transplants of Southwest Michigan, ( A chapter of T.R.I.O. )
Benton Harbor/ St. Josephs. MI
Meets the 3rd Tuesday of each month 7pm
Whitcomb Towers
509 Ship St.
St. Josephs, MI.
Correspondence can be sent to:
Gary Rouse
c/o P.O. Box 8786
Benton Harbor, MI 49023
President, Gary Rouse 616-423-6450 Fax. # 616-423-7024
Open to all, including the public
Owosso Transplant Support Group
Meets every 3rd Tuesday
7pm
Owosso Memorial Health Care Center
executive dining rm
Buddie Stroub, 517-743-4863
Second Chance
Macomb Center Hospital
Meets the 1st and 3rd Tuesday of each month 7 - 9pm
Macomb Center Hospital
12 Mile and Hoover
Warren, MI
For more information please call:
Pam Hill 810-756-7274
Second Time Around, Grand Rapids, MI.
Meets the 3rd Monday of each month 7 - 9 pm
Alternates between Blodgett and Butterworth Hospitals
( call for location )
Coordinator Jacquie Oliai 616-774-7641
Open to all pre- and post transplants and their families
Shiawassee County Are T.I.M.E. (Transplant in Motion Everywhere)
Owosso, MI
Meets the 3rd Tuesday of each month 7pm
Owosso Memorial Health Care Center
Executive Dining Room
President, Buddie Stroub 517-743-4863
Open to all pre- and post transplants and their families
Southwestern Michigan TRIO (a chapter of
TRIO)
56630 89th Avenue Lot 10
Decatur MI 49045
Gary Rouse, 616-423-6450
Open to All
Transplant Support Group/ Spouse and Significant Other Support Group
University of Michigan Medical Ctr.
C-300 Med Inn Building
Ann Arbor MI 48109-0834
Beverly Howard, MSW, ACSW,
Kingsland Kemperman, MSW, 313-764-3140
Liver Kidney Kidney/Pancreas Pancreas
University of Michigan Transplant Center Support Groups
Adult Transplant Support Group
Meets every Wednesday 11 am
UMMC 5C family waiting room
Jennifer Goldthwait, 734-936-7090
Kingsland Kemperman, 734-936-9469
UMMC Pediatric Transplant Support Group
Call for more information
Evie Dennerell, 734-763-5674
UMMC Heart Txp Support Group
Meets the 1st Friday of each month 10 - 12 noon
UMMC Room 1H205, 1st floor
Olivia Kuester, 734-936-5963
UMMC Lung Patients and Families Support Groups
Meets the 4th Thursday of each month 10 - 12 noon
UMMC Room 1H205, 1st floor
Olivia Kuester, 734-913-5963
UMMC Spouses and Significant Others of Transplant Patients
Meets every 2nd Thursday 4 - 5 pm
UMMC, 5C patient lounge
Kingsland Kemperman, 734-936-9469
Kidney/Pancreas/Liver Support Group
Meets every other Wednesday 11am to 12 noon
UMMC 7C patient/family lounge (location to change to Taubman, call to
confirm)
Jennifer Goldthwait, 734-936-9469
Kingsland Kemperman 734-936-9469
All support groups at UMMC are for pre/post transplants and their
families.
West Michigan Transplant Support Group ACT II
University of Michigan & Blodgette Hospital
5635 Haughey Ave. SW
Wyoming MI 49548
Wayne Carey, 616-534-7701
Open to All
Minnesota
Liver Transplant Patient & Family Support Group
Mayo Clinic
200 1st St. West
Rochester MN 55905
Jackie Johnson/Tim Haskamp, 507-284-2131
Liver
Liver Transplant Support Group
University of Minnesota Hospital
Box 181
Minneapolis MN 55455
Susanne Hollister, 612-626-3366/612-626-3165
Liver Liver/Kidney
Organ Transplant Support Group
Central Minnesota Group Health Plan
1245 15th St. North
St. Cloud MN 56303
Annette Jopp/Sandy Garrity/ Doris Gohman,
612-252-9893/612-252-7745/612-743-2003
Open to the Public
Second Chance For Life Foundation
University of Minnesota
4511 Westwood Ln.
Golden Valley MN 55416
Cal Stoll, Executive Director
612-374-1821 Heart Heart/Lung
TROM (Transplant Recipients Organization of Minnesota)
1965 Tatum St.
Roseville MN 55113
Chuck White, 612-647-9766
Open to All
Twin Cities Adult Liver Transplant Support Group
597 4th Ave.
Newport MN 55055
Jeannie Pearson, 612-459-0718
Liver (Adult)
Mississippi
TRIO New Beginning (a chapter of
TRIO)
Methodist Hospital
P.O. Box 16509
Hattiesburg MS 39404-6509
Rev. Roger Flowers, 601-268-8000
Open to All
Missouri
Liver Transplant Support Group
Barnes Hospital
One Barnes Hospital Plaza
St. Louis MO 63110
Alberta Hitchings, LCSW, 314-362-1956
Liver
Liver Transplant Support Group
Barnes Hospital
Hammonds Heart Institute Classroom
1235 East Cherokee
Springfield MO 65804
Mid-America Transplant Association, 417-862-6282
Liver (Pre- and Post-Transplant)
Liver Transplant Support Group
Children's Mercy Hospital
Kansas City MO 64108
Naomi Dubin, LCSW, 812-234-3720
Liver transplant patients families and children
Liver Transplant Support Group
Mid-America Transplant Association
2748 South Austin
Springfield MO 65807
Glenda K. Jones, RN, CPTC, 417-886-2500
Liver
Liver Transplant Support Group
Saint Louis University Hospital
3635 Vista Ave. at Grand Blvd.
St. Louis MO 63110-0250
Betsy Mackey, LCSW, 314-577-8865
Liver
Our Precious Ducts
914 Brightfield Ct.
Ballwin MO 63021
Patti A. Page, 314-230-5419
For Families with Children with Liver Diseases(Pre- and
Post-Transplant)
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Montana
The Big Sky Transplant Support Group
Deaconess Medical Center
318 30th St. West
Billings MT 59102
Bob Yurick, 406-656-4874
Open to All
Nebraska
Organ Transplant Support Group
University of Nebraska
Medical Center
600 South 42nd St.
Omaha NE 68198-1130
Jean Tomasek, ACSW/ Laura Beaumont, MSW, 402-559-4672
Organ Transplant Patients
Seconds for Life
2223 West 17th St.
Grand Island NE 68803
Bill Grimes, 308-384-7894
Open to All
New Jersey
The Liverable People
Department of Social Work Services
150 Berpen St. Rm. B-218
Newark NJ 07103
Carol Sullivan, MSW/Carol Ryan, 201-982-5734/201-836-2417
Liver
New Beginnings
Newark Beth Israel Medical Center
201 Lyons Ave.
Newark NJ 07112
Phyllis Conroy, SW, 201-926-7185
New Mexico
Duke City Liver Transplant
Group
11509 Versailles NE
Albuquerque NM 87111
Marvin Curl,
505-299-4241
Liver
New York
Biliary Atresia and Liver Transplant Network
3835 Richmond Ave. P.O. Box 190
Staten Island NY 10312
Mary McCarthy, 718-987-6200
email: organtrans@aol.com
Liver
Homecare Management Inc. (HMI)
80 Air Park Drive
Ronkonkoma, NY 11779
Katherine Paykin, CSW 800-637-5633
For all Organs but mainly lungs
Transplant Living Center Inc. (TLC)
Mt. Sinai Medical Center
225 East 95 St. Ste. 28K
New York NY 10128
Erica Miller/Barbara Klion, 212-735-6836
Liver (Post-Transplant)
Transplant Support Group
Montefiore Medical Center
Transplant Clinic
111 East 210 St. Bronx NY 10467
Frank Linsalato, ACSW , 718-920-5468
Open to All
Transplant Support Group of Upstate New York Inc.
19 Cottonwood Place
Albany NY 12205
Georgia Ann Lashoff President and Founder, 518-869-8518
Open to All
TRIO Brooklyn (a chapter of
TRIO)
48 Locust Drive
Amityville NY 11701
Wessie Marbury, 516-789-3890
Open to All
TRIO Long Island (a chapter of
TRIO)
Box 922
Huntington NY 11743
Anne Treffeisen/Jeanne Eichhorn, 516-421-3258/516-796-3613
Open to All
TRIO Manhattan (a chapter of
TRIO)
P.O. Box 122
Throggs Neck Station
Bronx NY 10465
Larraine DePasquale, 718-597-5619
Open to All
TRIO Rochester (a chapter of
TRIO)
29 Little Brook Dr.
Pittsford NY 14534
Richard Tuites, 716-586-2043
Open to All
TRIO Rockland and Orange (a chapter of
TRIO)
28 Jacaruso Dr.
Spring Valley NY 10977
Sheldon Blumenthal, 914-352-5099
Open to All
TRIO Twin Tiers (a chapter of
TRIO)
497 Dunbar Road
Windsor NY 13865
Harry Carlson, 607-655-1112
Open to All
TRIO West Chester - Putnam Co. (a chapter of
TRIO)
16 Clinton Avenue
Hastings- On-Hudson NY 10706
Dr. Alphonso Sorhaindo, 914-478-2827/718-430-0883/718-430-0800
Open to All
TRIO Western New York (a chapter of
TRIO)
40 Pfohl Place
Williamsville NY 14221
Jan Starks/Betty McNamara, 716-634-6480/716-632-4226/716-883-0003
Open to All
Champions of Organ Sharing
Lee Doss
Heart, Lung, Liver, Kidney, Pancreas Transplant Patients
TRIO Central New York (a chapter of
TRIO)
5123 Picnic Basket Place
Clay NY 13041
Paul G. Meigs, President, 315-699-1920
Open To All
North Carolina
Liver Support Group
University of North Carolina Hospitals - Chapel Hill
First floor lab conference room
Chapel Hill NC 27514
Eva Powell, MSW, 919-966-7865
Pre- and Post-Liver Tranpslant Patients
Central Carolina Liver Association
Carolinas Medical Center
P.O. Box 346
Elizabeth Station
Charlotte NC 28204
Ellen Calloway, 704-372-7974
Liver
North Dakota
Transplantation Services Educational Series
P.O. Box 1086
Fargo ND 58107
Jack Rydell, 701-234-6715
Open to All
OHIO
American Liver Foundation Support Group
702 North Erie St. #805
Toledo OH 43604
Richard Gee, 419-243-5777
Liver Open to All
Lively Livers - Baylor Headquarters
1857 Cherry Valley Rd.
Newark OH 43055
Judith Penrose, 614-522-5980
Liver
Liver Transplant Support Group
University Hospitals of Cleveland
11100 Euclid Ave.
Cleveland OH 44106
Barbara Levine, LISW, 216-844-3369
Liver - For University Hospitals Patients and Family Members Only
(Pre- and Post-Transplant)
Mid-Ohio TRIO (a chapter of
TRIO)
82 New Street
Greenwich OH 44837-1056
Jerry Shoemaker, 800-421-7252/419-752-3601
Open to All
Organ Donation Advocacy Group (ODAG)
The Ohio State University Medical Center
Department of Communications and Public Affairs
941 Chatham Ln. Ste. 105
Columbus OH 43221
Jennifer Reimer, 614-293-3638
Open to All (Vital Organ Transplants)
TRIO Akron-Canton (a chapter of
TRIO)
1529 19th St. NE
Canton OH 44714
Tom Behra, Canton - 216-453-8214 Akron - 216-867-3652
Open to All
TRIO Greater Cleveland (a chapter of
TRIO)
P.O. Box 93163
Cleveland OH 44101
President: Dorene Kray, (440)-473-8979 or (216)-232-0013
Open to all with an interest in transplantaton support and awareness.
TRIO Mahoning Valley (a chapter of
TRIO)
P.O. Box 3686
Youngstown OH 44513
Don DiVito, 216-758-4141
Open to All
TRIO - Miami Valley (a chapter of
TRIO)
c/o Life Connection
101 South Main
Dayton OH 45409
Barb Berry, 513-324-4744
Open to All
TRIO Renaissance (a chapter of
TRIO)
c/o Life Connection
1545 Holland Rd. Ste. C
Maumee OH 43537
Dr. William Chidester, 419-882-0048
Open to All
TRI State Liver Transplant Support Group
Patty Britton
2046 Bridgette Lane Hebron, KY 41048
689-7931
pbritton@fuse.net
for liver transplant candidates, recipients, and their families (no
dues, fees, or subscription rates)
Oklahoma
Liver Transplant Support Group
2817 South Hudson
Tulsa OK 74114-6323
Norma Hughes, 918-835-0173
Liver
Oklahoma TRIO (a chapter of
TRIO)
Baptist Medical Center of Oklahoma
3300 NW Expressway
Oklahoma City OK 73112
Beth Slentz, 405-949-3944
Open to All
Transplant/Dialysis Support Group
1514 South 137 East Ave.
Tulsa OK 74108
Kim Collins, 918-234-6227
Open to All
Oregon
Liver Support Group
Oregon Health Sciences University
3181 SW Sam Jackson Park Rd.
Department of Social Work - OP15A
Portland OR 97201
Mary Mahi, 503-494-4999
Liver
TRIO Portland (a chapter of
TRIO)
3922 S.E. 37th Avenue
Portland OR 97202
Cathy Steen, 503-775-8083
Open to All
Pennsylvania
Albert Einstein Medical Center Transplant Support Group
Albert Einstein Medical Center
5401 Old York Rd. Klein 505
Philadelphia PA 19141
Beverly Kirkpatrick, 215-456-6933
Liver Kidney Pancreas
Liver Support Group: Chronic Liver Disease & Transplant
Children's Hospital of Philadelphia
34th St. & Civic Center Blvd.
Philadelphia PA 19104
Marianne Buzby, 215-590-2764
Liver
Liver Transplant Support Group
St. Christopher's Hospital for Children
Erie Ave. at Front St.
Philadelphia PA 19134-1095
Kathy Falkenstein, 215-427-5292 ext. 4306
Liver
Liver Transplant Support Group
Hospital of the University of Pennsylvania
3400 Spruce St.
Philadelphia PA 19104
Dianne McChesney/Judy Eyer, 215-662-6948
Liver (Pre- and Post-Transplant)
Rhode Island
Rhode Island Organ Donor
Awareness Community
P.O. Box 40926
Providence RI 02940-0926
Bill Molloy, 401-944-7272
Open to All
172 Boston St.
Middleton MA 01949
Marty Smith Director, 508-777-6050/fax: 508-777-0620
Open to All
South Carolina
(T.L.C.) Tender Liver Care
Medical University of South Carolina
c/o 5865 Andreas Way North
North Charleston SC 29418-5201
Sally Dixon, 803-552-1930
Liver - All liver diseases (Pre- and Post-Transplant). Other
Transplant Patients Welcome
Upstate Liver Support Group
South Carolina Liver Association
168 Mountainview Dr.
Gray Court SC 29645
Brenda McConnell, 803-876-3290
South Dakota
Transplant Services of South Dakota
800 East 21st St.
P.O. Box 5045
Sioux Falls SD 57117-0545
Robin Thompson, 605-339-7730
Tennessee
Liver Tranpslant Support Group
Department of Veterans Affairs Transplant Center
1310 24th Ave. South
Nashville TN 37212-2637
Patricia M. Coffey, LCSW/ Katrina Stokes, MSSW
Liver
Liver Transplant Support Group
Vanderbilt University
801 Oxford House
1313 21st Ave. South
Nashville TN 37232-4753
Jenny Newsom, 615-936-0631
Liver
Texas
Adult Liver Transplant Support Group
Hermann Hospital
6411 Fannin
Houston TX 77030-1501
Jacquelyn M. Delaney, LMSW-ACP, 713-704-4972
Liver
Lively Livers - Baylor Headquarters
1857 Cherry Valley Rd.
Newark OH 43055
Judith Penrose, 614-522-5980
Liver
Liver Transplant Support Group
Baylor University Medical Center
3500 Gaston Ave.
Dallas TX 75246
Pam Reinke-Walter, LMSW-ACP/Sally Brown, LMSW-ACP,
214-820-2625/214-820-4420
Liver
The Living Gift
Columbia Center for Heart and Lung Failure
Medical City Dallas Hospital
7777 Forest Ln. D-308
Dallas TX 75230
Marlene Covin, RN/ Pam Terrones, RN, 214-661-7199/800-348-4318
Open to All (Pre- and Post-Transplant)
The Lucky Livers
Diagnostic Center Liver Transplant Support Group
6448 Fannin
Houston TX 77030
Mary Poarch, LMSW/ Dr. Margaret Bridges, 713-975-0428/713-797-9191
Liver
Utah
Rocky Mountain Support Group
LDS Hospital
8th Ave. C St.
Salt Lake City UT 84143
Roy Hussey, LCSW/ Sharon Fawsitt, LCSW, 801-321-2204/801-321-5034
Kidney Liver Pancreas
Vermont
172 Boston St.
Middleton MA 01949
Marty Smith Director, 508-777-6050/fax: 508-777-0620
Open to All
Washington
Parent Support Group
Children's Hospital and Medical Center
4800 Sand Point Way NE
P.O. Box C5371
Seattle WA 98105-0371
Karen Baughman, RN, MN/ Tim Hume, MSW, 206-526-2521
Liver
Transplant Support Organization
East 11415 28th
Spokane WA 99206
Karen Weber, 509-922-1281
Open to All
TRIO Cascade (a chapter of
TRIO)
815 NW 120th St.
Seattle WA 98117
Irwin Etter, 206-364-0813
Open to All
United Liver Association of Washington
32010 67th South
Roy WA 98580
Arleene Kroger, 206-843-2416
Liver
Washington DC
Howard University Hospital Transplant Support Group
Howard University Hospital
2041 Georgia Ave. NW
Washington DC 20060
John Robinson, Ed.D, MPH, 202-865-6611
Liver Kidney (Open to All Pre- and Post-Transplant)
West Virginia
Kidney/Liver Transplant Support Group
VA Transplant Center - Henrico Doctor's Hospital
1602 Skipwith Rd.
Richmond VA 23060
Gigi Spicer 804-289-4700
Open to All
Wisconsin
Central Wisconsin Area Second Chance for Life
Marshfield Clinic
LK-2 1000 North Oak Ave.
Marshfield WI 54449
First Tuesday of each month, 5:30pm
Leah Breu, RN, 715-387-5308
Open to All
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Links to Transplant Sites |
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http://clubs.yahoo.com/clubs/livertransplants On line Support |
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http://health.aol.drkoop.com/conditions/ency/article/003006.htm Dr. Koop |
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http://forums.delphiforums.com/liverfailure On line Support |
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http://www.transplantjournal.com/ Transplant Journals |
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http://www.cnn.com/HEALTH/9906/24/liver.transplant.02 Information |
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http://www.lhsc.on.ca/transplant/altsites.htm Links |
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http://www.astp.org/ American Society of
Transplant Physicians
As its name suggests, this site relates to the above society and contains
general information about the group, details of Awards made, public policy,
membership and various committees.
http://www.asf.org/ American Share
Foundation
When visited, the site was still under construction, however the American
Share Foundation is a national US charity aimed at candidates for
transplantation, transplant recipients, caregivers, families and members of
the public. It has links to lots of other transplant related sites.
http://www.argonet.co.uk/body/
British Organ Donor Society (BODY)
This site is still fairly embryonic, but gives details of the UK charity
BODY, and of the umbrella group TIME - Transplants in Mind. TIME organises
the annual public awareness campaign National Transplant Week, and
represents all the major UK charities involved in organ donation and
transplantation. The site also gives information on the British Transplant
Games.
http://www.cota.org/ Children's Organ
Transplant Association
With the aim of helping raise funds, the COTA group works to ensure that no
individual in the US is excluded from transplantation because of a lack of
funds. Contains personal testimonies and general information on
transplantation
http://www.med.umich.edu/trans/mcod/ The Michigan Coalition on Donation
A non profit alliance of professional, patient, health, science, transplant
and voluntary organisations which works to increase public awareness of
organ and tissue donation. Contains a number of links to other good
transplantation sites.
http://www.inil.com/users/paulh/facts.htm More Facts about Organ
Donation & Transplantation
Similar in tone and content to Facts about Organ Donation & Transplantation
http://web.idirect.com/~more/index.html MORE, Multiple Organ Retrieval &
Exchange Programme of Ontario (Canada)
The MORE project was set up to facilitate and coordinate donation and
retrieval/distribution of organs throughout Canada. The site provides
patient testimonies as well as plenty of statistics on organ donation. It
also gives links to Canadian centres and provides a registration form for
completion.
http://www.kidney.org/ National Kidney
Federation (US)
This site looks as if it will be a useful source of information, not just
about kidney transplants, but kidney disease in general, as well as details
of public education and fundraising campaigns planned. However, at the time
of visiting, large sections of the site were still under construction. Well
worth visiting.
http://www.transweb.org/ Transweb -
Transplantation and Donation
This site contains a huge amount of information, with sections for patient
information and information for healthcare professionals. One very useful
area is their page Transplantation resources on the Internet with links to
other web sites related to transplantation. However, like many web pages, it
is US based, which means there is not much information on activities taking
place outside the States. This is the most comprehensive site visited, and
the best first stop on a tour of transplant related resources on the
internet.
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