Insurance & Financial Aid

   Patient Assistance Programs and Free Meds
   Disability Benefits Important Steps to Apply
   SOCIAL SECURITY DISABILITY FAQs
   AMERICANS WITH DISABILITIES ACT
   Mike gives us some help on applying for Financial Aid
   Social Security will pay disability benefits for Cirrhosis
  SSDI regulations relevant to filing for hepatitis.
   Is it legal to be fired from my job if I have Hepatitis ?
 On The Way To The Social Security Office

 

Disability & Benefits: HCV Meets HMO
Jacques Chambers, CLU-

2008

Although they are not as popular as they once were, Health Maintenance Organizations (HMOs) and their close relatives, Exclusive Provider Organizations (EPOs) and Point of Service (POS) Plans, still provide coverage to the majority of people with health insurance.

While these plans have worked well for people who are generally healthy and have only temporary or minor medical problems, they can be a real challenge for persons dealing with chronic or catastrophic medical conditions, such as HCV.

The basic principle of HMOs is that, in return for a flat fee called capitation or premium, as well as nominal co-pays for services, they will provide all your medical needs. However, to make sure you get the “quality of care you need,” and, coincidentally avoid “unnecessary” and expensive “over-utilization,” a Primary Care Physician (PCP) must coordinate all your treatment. Regardless of what treatment you may need, you must first go to your PCP, who will usually be a general practitioner, possibly an Internist or Family Practice specialist.

This Primary Care Physician is also called the “Gatekeeper” – an extremely descriptive title. If you believe you should see a specialist, it is the Gatekeeper who decides whether or not you get to see the specialist, and, if so, which specialist you will see.

Remember the game of “Simon Says?” In the HMO world, it is “PCP Says.” Unless the PCP says you need a specialist, you will have to rely on the PCP to provide your care, whether it is something he/she is familiar with or not. Keep in mind that the fewer doctor visits, tests, and treatment you undergo, the bigger an HMO’s profits and the more the doctor/clinic will earn.

With a set-up like this, it makes you wonder if anyone ever gets good care from an HMO. Health care from an HMO does not have to be inferior. Thanks to the public outcry about HMOs skimping on care to increase their profits, Congress and many state legislatures have tightened regulation of this industry. Publicity by the media of problems with care from HMOs and the frequency of large jury awards have forced HMOs to make an effort to improve the quality of their care, or at least improve the image of their quality of care.

In fact, medical care can be excellent in an HMO. This is due in part to stricter oversight and regulation. It is also due to the doctors and other medical providers actually treating patients who still care about providing quality care to people who need it. However, the key to the quality of the care you receive is you and how actively you participate in the decisions about your healthcare.

There are a lot of excellent and caring medical providers working with HMOs, but you will have to seek them out. You will also have to make sure they continue to focus on your medical care, despite the bureaucratic barriers built into the HMO system.

In reality, the HMO is not that different from any other type of healthcare delivery system. You are the person who is ultimately responsible for seeing to it that you get the best care available. It is up to you to know the level of care you are actually receiving and to determine what quality of care you should be receiving.

It is up to you to take control of your medical care, and, to do that, you need to become more knowledgeable about all areas of your medical condition and its treatment.

Know your medical condition. Thanks to sites like the HCV Advocate and others on the web, there is a lot of information about hepatitis C and its treatment. Thanks to the Internet, you can stay current on new treatments, clinical trials, and new diagnostic methods.

HCV is a relatively recent discovery. There is a lot of information available about it, and there is a lot of research being done to learn more. It would be nice if everyone could find a physician whose practice consisted only of HCV patients, but that is not possible. You can become one of your physician’s sources of new information about HCV treatments and trials.

You should feel free to print out information, cut out articles and take them to your physician. Hopefully, he/she is already current, but you may be providing new information. If your doctor is not the type that welcomes such input from the patient, you may be seeing the wrong doctor.

Find a knowledgeable Primary Care Physician. The Centers for Disease Control states: “Any physician who manages a person with hepatitis C should be knowledgeable and current on all aspects of the care of a person with hepatitis C.”  Following this statement means that in an HMO, your Primary Care  Physician should be “knowledgeable and current” in HCV and its treatment.

Within virtually all HMO networks, you are able to select your own Primary Care Physician. Your selection of a PCP will determine not only who provides the majority of your care, but will also determine which specialists will be utilized when needed.

However, the HMO directory will give you only minimal information about your choices, and it won’t tell you which PCPs frequently treat patients with HCV or stay current about it. Clearly, you will need to do some research.

If you attempt to call the HMO itself, it will not provide much information, as they are prohibited from “steering” patients to particular clinics or doctors, even if it would mean better health care. You may have to call several doctors’ offices to learn more. Keep in mind the chances that you will actually get to speak to the doctor are very slim, but his nurse should be able to handle the questions as well. Some questions you may want to ask include:

   •  What is the doctor’s specialty? Is he/she board-certified? Many PCPs are internists, which may give them more experience with HCV.

   •  What chronic medical conditions does the doctor treat most frequently?

   •  Does the doctor treat other patients with HCV? How many? What percentage of their practice is HCV?

   •  What has been the doctor’s experience with HCV treatment? Do not hesitate to ask very specific questions, referring to treatments and using terms you have learned in your research on HCV. If they don’t know what you’re talking about, scratch them off your list and move on.

   •  Who are the gastroenterologists, hepatologists, infectious disease specialists, or other HCV knowledgeable specialists that the doctor works with and refers patients to? You may want to talk to their offices as well.

   •  How long does it take to get a referral once the PCP requests one?

Some PCPs even have the ability to permanently refer you to a specialist for treatment of chronic conditions such as HCV. In those cases, the specialist effectively becomes your PCP.  Ask your prospective PCPs if this is a possibility. This is particularly important if you can’t find a PCP knowledgeable in the treatment of HCV.

These are a lot of questions, I realize. However, neither the HMO nor your physician has as much at stake as you do in your medical care. This is your health and your life you are protecting, so spending some time and energy on this now can give you piece of mind and better healthcare later.

Medical office personnel are not always as helpful to prospective patients as you may think. One alternative is to learn as much as you can about your PCP choices, select one and schedule an appointment. Then you can ask the doctor directly and decide whether you want to stay with that PCP or switch to another. This will give you an excellent idea of how well they listen to you, how much time they are willing to spend with you, and their general “bedside” manner as well as their knowledge and experience of HCV.

Know your plan and your rights. You should spend some time with your Plan Document, the booklet that describes the provisions of your HMO coverage. While it is important to have a good idea of what is and isn’t covered, it is even more important to understand your rights under the plan. Not everything you need to know about your plan will be in the document. You may have to talk to a representative at the HMO itself or at the state regulatory agency, either your state’s Department of Insurance or Department of Managed Health Care, for information. Things you should know about your plan include:

   •  How do you change your PCP and how often can you do it? Be aware that if you are totally dissatisfied with your PCP, an HMO will often accommodate your request for a change regardless of their “rules.”

   •  What right do you have to appeal the denial of a referral or of a particular course of treatment? What are the time limits on such appeals? How does the appeal process work?

   •  What is the timeline for an expedited appeal if medical treatment is being withheld pending the appeal? Many states have enacted laws which require such appeals to be handled within 24 or 48 hours.

   •  Does the HMO offer Nurse Case Management for patients with chronic diseases such as HCV? Case Managers have an underlying purpose of saving the HMO money, but most of these case managers are trained nurses, and can be a valuable source of information about the HMO’s policies and rules and may even be an ally for you when “fighting the system.”

The days are long gone in any healthcare delivery system when patients could put themselves in the doctor’s hands and rest assured that they were getting the best and latest treatment. However, in the HMO system of healthcare, where the providers can increase profits by withholding care, it becomes even more important that you stay actively involved in your medical care. To do that, you must find knowledgeable medical providers who not only know about HCV, but who will listen to you and answer questions candidly about the input of the HMO in determining the direction of your care.

http://www.hcvadvocate.org/news/newsLetter/2008/advocate0308.html#6

 

Crucial Information From HCV ADVOCATE:

PDF A Guide to Hepatitis and Disability

Getting the Most from Your Health Insurance
PDF
PDF (download)

Understanding Your Health Insurance
PDF
PDF (download)

Taxing Disability Benefits
PDF
PDF (download)

Life Insurance: The Basics
PDF
PDF (download)

Doctors and Disability Forms
PDF
PDF (download)

Can a Person With Hepatitis C Purchase Insurance? (2005)
PDF
PDF (download)

A Final Word on Medicare Prescription Drug Benefits
PDF
PDF (download)

Guarantee Issue Health Insurance (2005)
PDF
PDF (download)

Medicare Drug Coverage Part 2
PDF
PDF (download)

Medicare Part D – The Prescription Drug Plan Additional Help for Low Income Beneficiaries
PDF
PDF (download)

Working When Collecting Disability Benefits
PDF
PDF (download)

Getting Health Insurance after Diagnosis
PDF
PDF (download)

Preparing to Leave Work on Disability
PDF
PDF (download)

Presumptive SSI (and Other Fantasies)
PDF
PDF (download)

Timetable for Leaving Work Due to Disability
PDF
PDF (download)

Medicare Part B and Other Health Insurance
PDF
PDF (download)

Completing Social Security and Insurance Questionnaires
PDF
PDF (download)

2005 Changes to Social Security & Medicare
PDF
PDF (download)

An Overview of Disability Insurance Coverage
PDFPDF (download)

Short Term Disability Benefits
PDF PDF (download)

Medicare Prescription Drug Discount Cards (and Other Changes to Medicare)
PDF PDF (download)

Tips When Filing For Disability Benefits
PDF PDF (download)

First Annual State of Health Insurance Address
PDF PDF (download)

Cleaning up Benefits Odds & Ends: Issues of Note for 2004
PDF PDF (download)

Social Security Continuing Disability Reviews (CDRs)
PDF
PDF (download)

 

Appealing a Denial
PDF
PDF (download)

Medicaid
PDF PDF (download)

Surviving HCV in an HMO
PDF PDF (download)

Helping Your Social Security Claim through the System
PDF PDF (download)

Can a Person With Hepatitis C Purchase Insurance?
PDF PDF (download)

COBRA - Extending Your Employer-Based Health Insurance
PDFPDF (download)

What's the Condition of Your Benefits Safety Net? Part 1 - Income
PDFPDF (download)

What's the Condition of Your Benefits Safety Net? Part 2 - Health Insurance and Cash Reserves
PDFPDF (download)

What Happens When Cobra Ends?
PDFPDF (download)

Guarantee Issue Health Insurance
PDFPDF (download)

Medicare Is Not Enough
PDF
PDF (download)

Life Settlements and HCV (Cash for Your Life Insurance Policy)
PDFPDF (download)

Open Enrollment
PDFPDF (download)

Monitoring Your Health Insurance Coverage
PDFPDF (download)

Health Insurance and Alternative/Complementary Medical Treatment
PDFPDF (download)

*Articles authored by Jacques Chambers, Benefits Counselor.

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Disability*

Social Security Consultative Examinations
PDF
PDF (download)

American with Disabilities Act: What It Does, and Doesn't Do
PDFPDF (download)

Family and Medical Leave Act (FMLA)
PDFPDF (download)

Determining Financial Eligibility for SSDI
PDFPDF (download)

Fibromyalgia, CFIDS, HCV and Social Security Disability
PDFPDF (download)
 

When Should You Leave Work on Disability?
PDFPDF (download)

Getting Disability Benefits Under Social Security with HCV
PDFPDF (download)

SSI and SSDI: How Much Difference Can A Letter Make?
PDFPDF (download)

Working While Collecting Social Security Disability
PDFPDF (download)

Keeping the Disability Checks Coming
PDF
PDF (download)

When Disability Insurance Says You're No Longer Disabled
PDFPDF (download)

*Articles authored by Jacques Chambers, Benefits Counselor.
 


 

 

 

 

 

Patient Assistance Programs

Americas Pharmaceutical companies have a long-standing tradition of providing prescription medicines free of charge to physicians whose patients might not otherwise have access to necessary medicines. Pharmaceutical companies operate these programs, commonly referred to as patient assistance programs, voluntarily.

Many drug manufacturers offer patient assistance programs which can greatly decrease or entirely eliminate the costs of many medications. The requirements for program eligibility vary. Some programs may be applied for directly by the patient, other program applications must be intiated by the healthcare provider (phsycian, pharmacist or agency).

Below are a few telephone numbers you can call to ask questions and URLS to visit for more information:

Product
Name
Hepatitis
Type
Parent
Company

Assistance Program
Contact Information

Infergen
(interferon alfacon-1)
Hepatitis C InterMune 888-696-8036
Intron A
(interferon alfa-2b)
Hepatitis B
Hepatitis C
Schering Commitment to Care
800-521-7157
Rebetron
(interferon alfa-2b and ribavirin)
Hepatitis C Schering Commitment to Care
800-521-7157
PEG-Intron
(peginterferon alfa-2b)
Hepatitis C Schering Commitment to Care
800-521-7157
PEG-Intron / Rebetol Combination
(peginterferon alfa-2b + ribavirin)
Hepatitis C Schering Commitment to Care
800-521-7157
Roferon A
(interferon alfa-2a)
Hepatitis C Roche 877-757-6243, option 4
Pegasys
(peginterferon alfa-2a)
Hepatitis C Roche Pegassist
877-734-2797
Pegasys / Copegus Combination
(peginterferon alfa-2a + ribavirin)
Hepatitis C Roche Pegassist
877-734-2797
Epivir HBV
(lamuvidine)
Hepatitis B
Hepatitis D
GlaxoSmithKline Glaxo Wellcome
Patient Assistance

800-722-9294
Hepsera
(adefovir dipivoxil)
Hepatitis B Gilead 800-226-2056


Medicare - Prescription Drug Assistance Programs
http://www.medicare.gov/Prescription/Home.asp

Pharmaceutical Research and Manufacturers of America
2001-2002 Directory of Prescription Drug Patient Assistance Programs
http://www.phrma.org/

NAMI-NYC METRO - Resources
http://naminyc.nami.org/pharma_nos.htm

NeedyMeds.com
http://needymeds.com/

Northeastern Pennsylvania Transplant Support Group Inc. (NEPATSG) list of
Pharmaceutical Manufacturer Financial Assistance Programs
http://www.nepatsg.org/finance.htm

To receive a copy of Pharmaceutical Research and Manufacturers of America's
Directory of Prescription Drug Patient Assistance Programs, contact 1-800-835-3410

Missing Out on Benefits?

BenefitsCheckUp helps thousands every day to find programs for people ages 55 and over that may pay for some of their costs of prescription drugs, health care, utilities, and other essential items or services. Please fill out our simple questionnaire to find programs that can assist you or your loved ones
http://benefitscheckup04.governmentguide.com/
 

Disability Benefits - Important Steps to Apply

Some people with chronic hepatitis are unable to work and need to turn to Social Security Disability or the Supplemental Security Income (SSI) benefits as an alternative. Unfortunately, because so little is known about hepatitis and its symptoms and effects, the process is often long and complicated.

To apply for Social Security disability payments contact your local Social Security Office or call 1-800-772-1213. Ask for a copy of the booklet on Social Security disability (No. 05-10029) and/or SSI (No. 05-11000) and the forms for applying. Eligibility for disability is based on prior work under Social Security, while SSI payments are made on the basis of financial need. For both programs, the medical requirements and determination process are the same. You will be considered disabled if you are unable to do any kind of work for which you are suited and your disability is expected to last for at least a year or to result in death. A claim may be filed by phone, mail, or visiting your local office. HFI has a few suggestions to help you with the application process.

  • Read the full instructions completely and carefully before you begin filling out any part of the application form.
     
  • Ask for extra forms so you can make a draft before filling out the final version.
     
  • Fill the form out yourself if at all possible - you know and understand your case better than anyone else.
     
  • Have someone else, a third party, not a spouse or parent or anyone who might be too sympathetic to be objective, read the form to give you constructive criticism.
     
  • Print or type the form, making sure that it is legible.
     
  • Always keep a copy of any form you fill out or paper verifying your claim that you file at the SS office.
     
  • Be thorough and exact when answering the questions.
     
  • Give a complete medical history because a lot is unknown about hepatitis and how it might affect you. Don’t leave out symptoms or problems because you think they are not related. Many members of the medical community may not know what is related. Describe the symptoms and side effects that you experience because you will have a better chance of fighting a denial.
     
  • You will need to supply the names, addresses and phone numbers of doctors, hospitals and clinics that have treated you and dates of treatment. If possible, get complete medical records yourself from doctors, hospitals, test results, etc. This way you don’t leave it to the SS office to decide what is and isn’t important and relevant. You have a right to have access to your records, so don’t let people refuse to let you see them. Include receipts for medication, cost of treatment, and medical bills to show expenses incurred because of the disease. Keep copies of everything you send or bring.
     
  • Get written statements from friends, family members, co-workers, and doctors to document your case. People can simply write a "To whom it may concern" letter citing specific changes in relationships and everyday activities due to your condition (lack of energy, depression).
     
  • Include an official copy of your birth certificate and any other document they request. You will need the SS number and proof of age for each person applying for payments. This includes your spouse or children if they are applying for benefits. You also need dates of prior marriages if your spouse is applying.
     
  • You will have to supply a summary of places you worked in the past 15 years and the kind of work you did.
     
  • Bring/Send a copy of your W-2 Form (Wage and Tax Statement) or if self-employed your Federal Tax return for the past year. They base their determination on earnings in the last 3 quarters so let them know if any changes occur.
     
  • Be patient. It will take time for your claim to be processed. It is reviewed by a medical board, and they may ask you to see a doctor or have additional tests at their expense.
     
  • Be cooperative.
  • We would like to thank Hepatitis Foundation

HEPATITIS FOUNDATION INTERNATIONAL
30 Sunrise Terrace, Cedar Grove, NJ 07009-1423, U.S.A.
Phone: 800-891-0707 FAX: 973-857-5044
 

 
   
   
   
 

 

 

 

  SOCIAL SECURITY DISABILITY FAQs
  1. What is the definition of disability used by Social Security?
  2. How many different types of Social Security disability benefits are there?
  3. How do I apply for Social Security disability benefits?
  4. I am disabled, but I have plenty of money in the bank. Do I have to wait until this money is gone before I apply for Social Security disability benefits?
  5. I used to work but lately I have been staying home taking care of the kids. I have now become sick. Can I get Social Security disability benefits?
  6. How long do I have to wait after becoming disabled before I can file for Social Security disability benefits?
  7. I am still on sick leave from my employer. Can I file for Social Security disability now or do I have to wait until the sick leave is exhausted?
  8. I got hurt on the job. I am drawing worker's compensation benefits. Can I file a claim for Social Security disability benefits now or should I wait until the worker's compensation ends?
  9. Can I get both worker's compensation and Social Security disability benefits?
  10. How can I tell if I will be found disabled by Social Security?
  11. Can you receive Social Security disability benefits for chronic hepatitis C?
  12. Do you have to be permanently disabled to get Social Security disability benefits?
  13. I have several health problems, but no one of them disables me. It is the combination that disables me. Can I get Social Security disability benefits?
  14. I got hurt in an automobile accident. I am disabled now, but I expect that I will be able to return to work after I recover. Should I file for Social Security disability benefits?
  15. How does Social Security determine if I am disabled?
  16. Who decides if I am disabled?
  17. Why does Social Security consider my age in determining whether I am disabled?
  18. Is there a list of impairments that Social Security considers disabling?
  19. What can I do to improve my chances of winning my Social Security disability claim?
  20. How do I find an attorney to represent me before on my Social Security disability claim?
  21. If I am approved for Social Security disability benefits, how much will I get?
  22. How far back will they pay benefits if I am found disabled?
  23. What do I do if Social Security denies my claim for Social Security disability benefits?
  24. Why does Social Security turn down so many claims for disability benefits?
  25. I only want to get back the money I put in Social Security. Why do they make it so hard for me to get my own money back?
  26. What is "reconsideration"?
  27. Who makes the reconsideration determination?
  28. What are my chances of winning at reconsideration?
  29. Do I have to go through reconsideration?
  30. How long does it take to get a hearing on a Social Security disability claim?
  31. What is the Social Security hearing like?
  32. What are my chances of winning at a hearing?
  33. If the Administrative Law Judge denies my claim, can I appeal any more?
  34. What is the Appeals Council?
  35. Can I appeal a case beyond Social Security to the Federal Courts?
  36. If I get on Social Security disability benefits and get to feeling better and want to return to work, can I return to work?
  37. Where can I go to get help with my Social Security disability claim?
  38. Do I really have to hire a lawyer to represent me in my Social Security disability claim?
  39. How do lawyers who represent Social Security disability claimants get paid?
  40. Can alcoholics and drug addicts really get Social Security disability benefits?
  41. I know someone who is on Social Security disability and he does not look a bit disabled. Why do they put all of these freeloaders on benefits?
  42. I am disabled, but I have never worked at public work. Can I get Social Security disability benefits?
  43. I am a widow. I have not worked in public work in many years. I am disabled. Can I get Social Security disability benefits?
  44. I have a daughter who has been disabled by cerebral palsy since birth and has never been able to work. Can she get disability benefits from Social Security?
  45. I am already on Social Security disability benefits, but I am worried that my benefits will be stopped in the future. What are the chances of this happening?
  46. If Social Security tries to cut off my disability benefits, what can I do?
  47. My doctor says I am disabled so why is Social Security denying my Social Security disability claim?
  48. VA says I am disabled, so why is Social Security denying my Social Security disability claim?
  49. I am 60% disabled. Do I get 60% of my Social Security disability benefits?
  50. I am disabled by mental illness. Can mental illness serve as the basis for a Social Security disability claim?
  51. Will it help if I ask my Congressional Representative to help me get Social Security disability benefits?
  52. How long does it take before Social Security makes a decision once I file a claim for Social Security disability benefits?
  53. How long does it take for Social Security to make a reconsideration determination on my Social Security disability claim?
  54. How long does it take for Social Security to act upon a request for Appeals Council review?
  55. I am disabled. I need help with medical bills even more than I need a cash income. How do I get help with medical bills?
  56. What is the difference between Medicare and Medicaid?
  57. If I get Social Security disability benefits will I get Medicare?
  58. If I get Social Security disability benefits will I get Medicaid?

1. What is the definition of disability used by Social Security?

Under the Social Security Act, "disability" means "inability to engage in any substantial gainful activity by reason of any medically determinable physical or mental impairment which can be expected to result in death or has lasted or can be expected to last for a continuous period of not less than 12 months."

2. How many different types of Social Security disability benefits are there?

There are at least five major types of Social Security disability benefits. Disability Insurance Benefits is the most important type of Social Security disability benefits. It goes to individuals who have worked in recent years (five out of the last 10 years in most cases) who are now disabled. Disabled Widow's and Widower's Benefits are paid to individuals who are at least 50 and become disabled within a certain amount of time after the death of their husband or wife. The late husband or wife must have worked enough under Social Security to be insured. Disabled Adult Child Benefits go to the children of persons who are deceased or who are drawing Social Security disability or retirement benefits. The child must have become disabled before age 22. For Disability Insurance Benefits, Disabled Widow's or Widower's Benefits and Disabled Adult Child benefits, it does not matter whether the disabled individual is rich or poor. Benefits are paid based upon a Social Security earnings record. Supplemental Security Income benefits, however, are paid to individuals who are poor and who are disabled. It does not matter for SSI whether an individual has worked in the past or not. SSI child's disability benefits are a variety of SSI benefits paid to children under the age of 18 who are disabled. The way in which disability is determined is a bit different for children.

3. How do I apply for Social Security disability benefits?

The best, surest way to file a Social Security disability claim is to go to the nearest Social Security office in person and wait (often for a few hours) to see someone to file the claim in person. In the alternative, a person may contact Social Security by telephone and arrange for a telephone interview to file the claim.

4. I am disabled, but I have plenty of money in the bank. Do I have to wait until this money is gone before I apply for Social Security disability benefits?

No. If you have worked in recent years or if you are applying for Disabled Widow's or Widower's benefits or Disabled Adult Child benefits, it does not matter how much money you have in the bank. There is no reason to wait to file the claim.

5. I used to work but lately I have been staying home taking care of the kids. I have now become sick. Can I get Social Security disability benefits?

Possibly. If you have worked five out of the 10 years under Social Security before becoming disabled, you will have enough earnings in to potentially qualify for Social Security disability benefits. For individuals 31 or less, the requirements are a little different, since such individuals have not had such a long time to work. Unless a person has been staying home and taking care of their children for quite a long time, however, it is very possible that they will qualify for Social Security disability benefits based upon their own earnings. Also a homemaker, if poor enough, can qualify for Supplemental Security Income (SSI) whether he or she has worked in the past or not.

6. How long do I have to wait after becoming disabled before I can file for Social Security disability benefits?

Not even one day. You can file for Social Security disability benefits on the very same day that you become disabled. Many individuals make the mistake of waiting months and even years after becoming disabled before filing a Social Security disability claim. There is no reason to file a Social Security disability claim if one has only a minor illness or one which is unlikely to last a year or more. However, an individual who suffers serious illness or injury and expects to be out of work for a year or more should not delay in filing a claim for Social Security disability benefits.

7. I am still on sick leave from my employer. Can I file for Social Security disability now or do I have to wait until the sick leave is exhausted?

No, you do not have to wait until the sick leave is exhausted. You should file for Social Security disability benefits now, if you believe that you will be out of work for a year or more.

8. I got hurt on the job. I am drawing worker's compensation benefits. Can I file a claim for Social Security disability benefits now or should I wait until the worker's compensation ends?

You do not have to wait until the worker's compensation ends and you should not wait that long. An individual can file a claim for Social Security disability benefits while receiving worker's compensation benefits. It is best to file the Social Security disability claim as soon as possible because otherwise there may be a gap between the time the worker's compensation ends and the Social Security disability benefits begin.

9. Can I get both worker's compensation and Social Security disability benefits?

Yes. There is an offset, which reduces Social Security disability benefits because of worker's compensation benefits paid, but in virtually all cases, there is still some Social Security disability benefits to be paid. In a few states the offset works the other way - - worker's compensation benefits are reduced because of Social Security disability benefits.

10. How can I tell if I will be found disabled by Social Security?

Unless your disability is catastrophic (such as terminal cancer, a heart condition so bad that you are on a heart transplant waiting list, total paralysis of both legs, etc.), there is no easy way for you to tell whether you will be found disabled by Social Security. In the end, the decision of whether or not to apply for Social Security disability benefits should not be based upon whether or not the person feels that Social Security will find them disabled. Attorneys familiar with Social Security disability can make predictions about who will win and who will lose, but even they can seldom be sure. An individual should make the decision about whether or not to file for Social Security disability based upon their own belief about their condition. If the individual feels that he or she is disabled and is not going to be able to return to work in the near future, the individual should file for Social Security disability benefits. If denied, the individual should consult with an attorney familiar with Social Security disability to get an opinion as to the chances of success on appeal.

11. Can you receive Social Security disability benefits for chronic hepatitis C?

In almost every case, no matter what the disease is, the answer is the same - "Maybe, it just depends upon how badly you are affected by the disease." One example might be cancer. The word "cancer" is scary to anyone, but there are many cancers which can be treated and cured very quickly, with little or no lasting effect. On the other hand, of course, there are cancers which cause great suffering and ultimately death. The question in each individual case is "How sick is this particular individual with cancer and how long is this person going to remain sick?" Skin diseases are another example. The vast majority of skin diseases, while annoying, would not be considered to be disabling. On the other hand, there are some uncommon, very severe skin problems which are clearly disabling. In extreme cases, psoriasis, which is not rare, may be disabling. Thus, almost without exception, the mere fact that an individual has a disease with a certain name does not guarantee that the individual either will or will not be found disabled. It all depends upon how sick the person is.

12. Do you have to be permanently disabled to get Social Security disability benefits?

No. You have to have been disabled for at least a year or be expected to be disabled for at least a year or have a condition that can be expected to result in death within a year.

13. I have several health problems, but no one of them disables me. It is the combination that disables me. Can I get Social Security disability benefits?

Social Security is supposed to consider the combination of impairments that an individual suffers in determining disability. Many, perhaps most claimants for Social Security disability benefits have more than one health problem and the combined effects of all of the health problems must be considered.

14. I got hurt in an automobile accident. I am disabled now, but I expect that I will be able to return to work after I recover. Should I file for Social Security disability benefits?

If you expect to be out of work for a year or more on account of illness or injury, you should file for Social Security disability benefits.

15. How does Social Security determine if I am disabled?

Social Security is supposed to gather your medical records and carefully consider all of your health problems, as well as your age, education, and work experience. In general, Social Security is supposed to decide whether you are able to do your past work. If Social Security decides that you are unable to do your past work, they are supposed to consider whether there is any other work which you can do considering your health problems and your age, education, and work experience.

 

16. Who decides if I am disabled?

After an individual files a Social Security disability claim, the case is sent to a disability examiner at the Disability Determination agency in your state. This individual, working with a doctor, makes the initial decision on the claim. If the claim is denied and the individual requests reconsideration, the case is then sent to another disability examiner at the Disability Determination agency, where it goes through much the same process. If a claim is denied at reconsideration, the claimant may then request a hearing. At this point, the case is sent to an Administrative Law Judge who works for Social Security. The Administrative Law Judge makes an independent decision upon the claim. This is the only level at which the claimant and the decision maker get to see each other.

17. Why does Social Security consider my age in determining whether I am disabled?

Social Security has to consider age, because that is what the Social Security Act requires. As people get older, they become less adaptable, less able to switch to different jobs to cope with health problems. A severe foot injury which might cause a 30- year- old to switch to a job in which he or she can sit down most of the time, might disable a 60- year- old person who could not make the adjustment to a different type of work.

18. Is there a list of illnesses that Social Security considers disabling?

Not really. Because most types of illness can vary from minor to severe, there is no one simple list of illnesses which Social Security considers to be disabling. However, if an illness has reached a very severe level with certain medical hallmarks, Social Security will award benefits on the basis of medical considerations alone.

19. What can I do to improve my chances of winning my Social Security disability claim?

Be honest and complete in giving information to Social Security about what is disabling you. Many claimants, for instance, fail to mention their psychiatric problems to Social Security because they are embarrassed about them. In almost all cases, individuals who were slow learners in school fail to mention this fact to Social Security, even though it can have a good deal to do with whether or not the Social Security disability claim is approved. Beyond being honest and complete with Social Security, the most important thing that you can do is just keep appealing and hire an experienced person to represent you. It is important to appeal because most claims are denied at the initial level, but are approved at higher levels of review. It is important to hire an experienced person to represent you because you do not understand the way Social Security works. Statistically, claimants who employ an attorney to represent them are much more likely to win than those who go unrepresented.

20. How do I find an attorney to represent me before on my Social Security disability claim?

The National Organization of Social Security Claimants' Representatives (NOSSCR) offers a referral service. You may call NOSSCR at 1-800-431-2804 during regular Eastern Time business hours.

21. If I am approved for Social Security disability benefits, how much will I get?

For disability insurance benefits, it all depends upon how much you have worked and earned in the past. For disabled widow's or widower's benefits, it depends upon how much the late husband or wife worked and earned. For disabled adult child benefits, it all depends upon how much the parent worked and earned. For all types of SSI benefits, there is a base amount that an individual with no other income receives. Other income that an individual has reduces the amount of SSI which an individual can receive.

22. How far back will they pay benefits if I am found disabled?

For Disability Insurance Benefits and for Disabled Widow's and Widower's Benefits, the benefits cannot begin until five months have passed after the person becomes disabled. In addition, benefits cannot be paid more than one year prior to the date of the claim. For a Disabled Adult Child, there is no five-month waiting period before benefits begin, but benefits cannot be paid more than six months prior to the date of the claim. SSI benefits cannot be paid prior to the start of the month following the date of the claim.

23. What do I do if Social Security denies my claim for Social Security disability benefits?

First, do not be surprised. Only about 40% of Social Security disability claims are approved at the initial level. If you are denied at the initial level, unless you have already returned to work or expect to return to work in the near future, you should appeal, that is, file a request for reconsideration. You should also consider employing an attorney to represent you.

24. Why does Social Security turn down so many claims for disability benefits?

There is no simple answer to this question. One reason is that there is no simple way to determine whether an individual is disabled. Most people who are disabled suffer from pain. There is no way of determining whether or not another individual is in pain, much less how much pain they are in. A second reason is that Social Security over the years has been more concerned with making sure that everyone who is receiving Social Security disability benefits is "truly" disabled than with making sure that everyone who is disabled receives Social Security disability benefits. An underlying reason is that Congress has always believed that, given a chance, many people will "fake" disability in order to get benefits.

25. I only want to get back the money I put in Social Security. Why do they make it so hard for me to get my own money back?

Actually, when you file a Social Security disability claim, you are not trying to just get "your own money" back. The money that an individual may have paid into Social Security over the years would not last very long if that was all that an individual could draw from Social Security.

26. What is "reconsideration"?

When a claim for Social Security disability benefits is denied at the initial level, the claimant may then request "reconsideration" of that decision. The case is then sent to a different disability examiner for a new decision. Unfortunately, about 80% of the time the reconsideration decision is the same as the initial decision - a denial.

27. Who makes the reconsideration determination?

A disability examiner at the Disability Determination Section makes the reconsideration determination. Most of the time, the claimant does not see the disability examiner or even know his or her name.

28. What are my chances of winning at reconsideration?

Statistically, about 20% of the time a claimant wins at reconsideration.

29. Do I have to go through reconsideration?

If you want to appeal a denial of Social Security disability benefits, you have to go through reconsideration. There is no way to avoid it.

30. How long does it take to get a hearing on a Social Security disability claim?

There is much variation around the country. In a few areas of the country the wait is only three months. In a few areas of the country the wait is more than a year.

31. What is the Social Security hearing like?

The hearings are fairly informal. The only people likely to be there are the judge, a secretary operating a tape recorder, the claimant, the claimant's attorney, and anyone else the claimant has brought with him or her. In some cases, the Administrative Law Judge has a medical doctor or vocational expert present to testify at the hearing. There is no jury nor are there any spectators at the hearing. There is no attorney at the hearing representing Social Security trying to get the judge to deny the disability claim.

32. What are my chances of winning at a hearing?

Statistically, over half of the claimants who have a Social Security disability hearing win.

33. If the Administrative Law Judge denies my claim, can I appeal any more?

Yes. You can appeal to the Appeals Council which is still within Social Security.

34. What is the Appeals Council?

The Appeals Council exists to review Administrative Law Judge decisions. The Appeals Council is located in Falls Church, Virginia, and neither the claimant nor the attorney sees the people at the Appeals Council who are working on the case.

35. Can I appeal a case beyond Social Security to the Federal Courts?

Yes. After being denied by the Appeals Council, it is possible for a claimant to file a civil action in the United States District Court, requesting review of Social Security's decision. A Social Security disability claim can go all the way to the Supreme Court. Perhaps once every year or two years, the United States Supreme Court actually hears an appeal about a Social Security disability case.

36. If I get on Social Security disability benefits and get to feeling better and want to return to work, can I return to work?

Certainly you can return to work. Social Security wants individuals drawing disability benefits to return to work and gives them every encouragement to do so. For persons receiving Disability Insurance Benefits, Disabled Widow's and Widower's Benefits, and Disabled Adult Child Benefits, full benefits may continue for a year after an individual returns to work. Even thereafter, an individual who has to stop work in the following three years can get back on Social Security disability benefits immediately without having to file a new claim. In SSI cases, things work a differently, but there is still a strong encouragement to return to work.

37. Where can I go to get help with my Social Security disability claim?

For help, go to a lawyer or other person who represents Social Security disability claimants on a regular basis. If you need a referral to a lawyer who represents Social Security claimants, call the referral service of the National Organization of Social Security Claimants' Representatives (NOSSCR) at 1-800-431-2804.

38. Do I really have to hire a lawyer to represent me in my Social Security disability claim?

No. You can go through all of the levels of review on your own, if you wish, but statistically claimants who are represented by an attorney win a good deal more often than those who are not represented.

39 How do lawyers who represent Social Security disability claimants get paid?

In almost all cases, the attorney receives one- quarter of the back benefits if the claimant wins and no fee if the claimant loses.

40. Can alcoholics and drug addicts really get Social Security disability benefits?

Not anymore. There never were all that many people getting Social Security disability benefits on account of alcoholism or drug addiction, but Congress has now prohibited Social Security from paying disability benefits on the basis of alcoholism or drug addiction. However, alcoholics and drug addicts have heart attacks, get cancer or get sick in other ways just like everyone else. Alcoholics and drug addicts who become disabled apart from their alcoholism or drug addiction can become eligible for Social Security disability benefits.

41. I know someone who is on Social Security disability and he does not look a bit disabled. Why do they put all of these freeloaders on benefits?

When it comes to disability, looks can be very deceiving. There are many people who look quite healthy but who are quite disabled by anyone's standard. For instance, many individuals who suffer from very severe psychiatric illness are physically healthy and able to do things such as mow their yards.

42. I am disabled, but I have never worked at public work. Can I get Social Security disability benefits?

If you are poor enough, you can qualify for Supplemental Security Income (SSI) if you are disabled, even if you have never worked in the past. It is also possible to qualify for Disabled Adult Child Benefits on the account of a parent if you became disabled before age 22 or for disabled widow's or widower's benefits on the account of a late husband or wife.

43. I am a widow. I have not worked in public work in many years. I am disabled. Can I get Social Security disability benefits?

If you are over 50 and became disabled within seven years after your husband or wife died or within seven years after you last drew mother's or father's benefits from Social Security, you can get Disabled Widow's or Widower's Benefits. Perhaps more important, if you are poor, you can draw Supplemental Security Income benefits no matter what age you are or when you became disabled.

44. I have a daughter who has been disabled by cerebral palsy since birth and has never been able to work. Can she get disability benefits from Social Security?

Very possibly. If the child is under 18 and you are poor enough, the child may be able to qualify for SSI child's disability benefits. If the child is over 18, she may be able to qualify for SSI disability benefits without regard to the income of her parents. If her father or mother is drawing Social Security benefits of some type or is deceased, the child may be eligible for disabled adult child benefits.

45. I am already on Social Security disability benefits, but I am worried that my benefits will be stopped in the future. What are the chances of this happening?

Social Security is not supposed to cut off disability benefits for an individual unless his or her medical condition has improved. When Social Security reviews a case of someone already on Social Security disability benefits, they continue benefits in the vast majority of cases. In recent years, Social Security has been doing few reviews to determine whether or not individuals already on Social Security disability benefits are still disabled. This is changing and Social Security should be doing far more reviews in the next few years. However, the vast majority of individuals who are reviewed will see their Social Security disability benefits continued.

46. If Social Security tries to cut off my disability benefits, what can I do?

You should appeal immediately. If you appeal within 10 days after being notified that your disability benefits are being ceased, you can ask that your disability benefits continue while you appeal the decision cutting off your benefits. You may also want to talk with an attorney about representation on your case, but you should file the appeal immediately.

47. My doctor says I am disabled so why is Social Security denying my Social Security disability claim?

Social Security's position is that it is not up to your doctor to determine whether or not you are disabled. It is up to them and they will make their own decision regardless of what your doctor thinks.

48. VA says I am disabled, so why is Social Security denying my Social Security disability claim?

It is Social Security's position that VA decisions are not binding upon them. Social Security and VA have very different standards for approving disability claims.

49. I am 60% disabled. Do I get 60% of my Social Security disability benefits?

No. There are no percentages of disability in Social Security disability determination. For purposes of Social Security disability benefits, you are either disabled or not disabled. There are no percentages of disability, nor any percentages of disability benefits.

50. I am disabled by mental illness. Can mental illness serve as the basis for a Social Security disability claim?

Yes. Mental illness is a frequent basis for awarding Social Security disability benefits.

51. Will it help if I ask my Congressional Representative to help me get Social Security disability benefits?

Many Social Security disability claimants become frustrated with claim delays and eventually ask their U.S. Representative or Senator to help. The local Congressional office typically will have staffers who are experienced with Social Security procedures and personnel. A “Congressional Inquiry,” as it is called at Social Security, may help to get a stalled process moving again. Note that the inquiry will have no impact on how Social Security decides the outcome of the case.

52. How long does it take before Social Security makes a decision once I file a claim for Social Security disability benefits?

In most cases Social Security makes the first decision within four months.

53. How long does it take for Social Security to make a reconsideration determination on my Social Security disability claim?

In most case Social Security makes the reconsideration determination within four months.

54. How long does it take for Social Security to act upon a request for Appeals Council review?

About a year, maybe longer.

55. I am disabled. I need help with medical bills even more than I need a cash income. How do I get help with medical bills?

Getting help with medical bills is usually tied up with getting cash benefits, that is, you don't start getting help with medical bills until after you start getting the cash benefits, so you have to keep going with the Social Security disability claim in order to get the help with medical bills.

56. What is the difference between Medicare and Medicaid?

The short answer is that Medicaid is a poverty program and Medicare isn't. Most disabled people who get Medicaid get it because they are on Supplemental Security Income (SSI). To get SSI and thereby get Medicaid you have to be poor and disabled. Medicaid pays doctors at very low rates. People who have only Medicaid can have a hard time finding doctors willing to take them on as patients. Medicaid does pay for prescription medications. Medicaid can go back up to three months prior to the date of a Medicaid claim. For Medicare it does not matter whether you are rich or poor. If you have been on Disability Insurance Benefits, Disabled Widows or Widowers Benefits or Disabled Adult Child Benefits for 24 months you qualify for Medicare. The good thing about Medicare is that it pays doctors at a higher rate than Medicaid. Almost all doctors are happy to take Medicare patients. The bad things about Medicare are that it does not begin until after a person has been on cash disability benefits for two years and that it generally does not pay for prescription medications.

57. If I get Social Security disability benefits will I get Medicare?

If you are approved for any kind of Social Security disability benefit other than SSI you will get Medicare after you have been entitled to Social Security disability benefits for two years.

58. If I get Social Security disability benefits will I get Medicaid?

If you are approved for SSI you will get Medicaid. It is possible to get both Medicare and Medicaid if you are entitled to SSI and some other type of Social Security disability benefit.

 
 
Mike gives us some help on applying for Financial Aid
 
CAUTIONARY NOTE: This article is intended to be a general explanation of the law and regulations. Claimants are encouraged to consult experienced representatives to determine how these issues relate to their particular claims. While a representative in this area of the law need not be a licensed attorney, experience with this program and its unique structure is important. Readers should not rely upon this article as legal advice.

FIRST, ME:

I'm Mike, "heppie" or "heppie2000".
I'm not a lawyer...I'm a "hepper".
I have Hepatitis C...known to us heppers as "The Dragon".

I lost my job because of The Dragon.

On February 2nd, 1999, I was given 30 days off with pay before my forced retirement was effective. Before that time was up I had realized my working days were over. I made my application for Social Security Disability effective the same day my termination was effective...March 2nd. I had filled out all their forms, even wrote a letter explaining all about Hep C, it's effect on my health, my mental state and my ability to work. I had all my bases covered.

I got turned down flat.

The very day I was turned down I called a law firm that specializes in Social Security Disability cases. I talked with their main man two days later, and hired him. He got the name & address of my gastro-doc and he set the ball rolling for my appeal. Now we were getting somewhere!

I got turned down again.

The next step was to have a hearing before an Administrative Law Judge (ALJ) and my attorney said that's what really counted.

The hearing was held December 3, 1999. It seemed to go well. I had already sent the ALJ 2 letters from my gastroenterologist and 1 from two Primary Care Physicians, all saying that I was a very sick puppy. He also had copies of all my test results, as well as my biopsy (which was very important, I believe). At the hearing, we gave him a letter from my former employer saying that I had become too sick to work. A former co-worker testified that he had actually picked me up off the ground and carried me after I had fallen and couldn't get up. That was a real tear-jerker.

On February 3, 2000, one year exactly from the first full day I missed from work, I received notification that my ALJ's decision was "FULLY FAVORABLE"!!!

Actually, the judge found that my impairments "do not meet or equal in medical severity the criteria of any impairment listed."...Scared the pee out of me.....

BUT.....He also determined that a "preponderance of the evidence in this case establishes that